A novel assessment tool for clinical care of patients with autoinflammatory disease: juvenile autoinflammatory disease multidimensional assessment report.
Identifieur interne : 000D22 ( Main/Exploration ); précédent : 000D21; suivant : 000D23A novel assessment tool for clinical care of patients with autoinflammatory disease: juvenile autoinflammatory disease multidimensional assessment report.
Auteurs : Dilek Konukbay [Turquie] ; Marco Gattorno [Italie] ; Dilek Yildiz [Turquie] ; Joost Frenkel [Pays-Bas] ; Cengizhan Acikel [Turquie] ; Betul Sozeri [Turquie] ; Balahan Makay [Turquie] ; Nuray Aktay Ayaz [Turquie] ; Kenan Barut [Turquie] ; Aysenur Kisaarslan [Turquie] ; Yelda Bilginer [Turquie] ; Dursun Karaman [Turquie] ; Harun Peru [Turquie] ; Dogan Simsek [Turquie] ; Ozlem Aydog [Turquie] ; Erbil Unsal [Turquie] ; Zubeyde Gunduz [Turquie] ; Berna Eren Fidanci [Turquie] ; Isabelle Kone-Paut [France] ; Ozgur Kasapcopur [Turquie] ; Angelo Ravelli [Italie] ; Seza Ozen [Turquie] ; Erkan Demirkaya [Turquie]Source :
- Clinical and experimental rheumatology [ 0392-856X ]
Descripteurs français
- KwdFr :
- Adolescent (MeSH), Coûts indirects de la maladie (MeSH), Enfant (MeSH), Enfant d'âge préscolaire (MeSH), Enquêtes et questionnaires (MeSH), Facteurs âges (MeSH), Femelle (MeSH), Fièvre (diagnostic), Fièvre (physiopathologie), Fièvre (psychologie), Fièvre (thérapie), Fièvre méditerranéenne familiale (diagnostic), Fièvre méditerranéenne familiale (physiopathologie), Fièvre méditerranéenne familiale (psychologie), Fièvre méditerranéenne familiale (thérapie), Humains (MeSH), Indice de gravité de la maladie (MeSH), Maladies auto-inflammatoires héréditaires (diagnostic), Maladies auto-inflammatoires héréditaires (physiopathologie), Maladies auto-inflammatoires héréditaires (psychologie), Maladies auto-inflammatoires héréditaires (thérapie), Mâle (MeSH), Qualité de vie (MeSH), Reproductibilité des résultats (MeSH), Valeur prédictive des tests (MeSH), État de santé (MeSH).
- MESH :
- diagnostic : Fièvre, Fièvre méditerranéenne familiale, Maladies auto-inflammatoires héréditaires.
- physiopathologie : Fièvre, Fièvre méditerranéenne familiale, Maladies auto-inflammatoires héréditaires.
- psychologie : Fièvre, Fièvre méditerranéenne familiale, Maladies auto-inflammatoires héréditaires.
- thérapie : Fièvre, Fièvre méditerranéenne familiale, Maladies auto-inflammatoires héréditaires.
- Adolescent, Coûts indirects de la maladie, Enfant, Enfant d'âge préscolaire, Enquêtes et questionnaires, Facteurs âges, Femelle, Humains, Indice de gravité de la maladie, Mâle, Qualité de vie, Reproductibilité des résultats, Valeur prédictive des tests, État de santé.
English descriptors
- KwdEn :
- Adolescent (MeSH), Age Factors (MeSH), Child (MeSH), Child, Preschool (MeSH), Cost of Illness (MeSH), Familial Mediterranean Fever (diagnosis), Familial Mediterranean Fever (physiopathology), Familial Mediterranean Fever (psychology), Familial Mediterranean Fever (therapy), Female (MeSH), Fever (diagnosis), Fever (physiopathology), Fever (psychology), Fever (therapy), Health Status (MeSH), Hereditary Autoinflammatory Diseases (diagnosis), Hereditary Autoinflammatory Diseases (physiopathology), Hereditary Autoinflammatory Diseases (psychology), Hereditary Autoinflammatory Diseases (therapy), Humans (MeSH), Male (MeSH), Predictive Value of Tests (MeSH), Quality of Life (MeSH), Reproducibility of Results (MeSH), Severity of Illness Index (MeSH), Surveys and Questionnaires (MeSH).
- MESH :
- diagnosis : Familial Mediterranean Fever, Fever, Hereditary Autoinflammatory Diseases.
- physiopathology : Familial Mediterranean Fever, Fever, Hereditary Autoinflammatory Diseases.
- psychology : Familial Mediterranean Fever, Fever, Hereditary Autoinflammatory Diseases.
- therapy : Familial Mediterranean Fever, Fever, Hereditary Autoinflammatory Diseases.
- Adolescent, Age Factors, Child, Child, Preschool, Cost of Illness, Female, Health Status, Humans, Male, Predictive Value of Tests, Quality of Life, Reproducibility of Results, Severity of Illness Index, Surveys and Questionnaires.
Abstract
OBJECTIVES
To develop and test a new multidimensional questionnaire for assessment of children with auto-inflammatory disease (AID) such as FMF, PFAPA, HIDS, TRAPS in standard clinical care.
METHODS
The juvenile auto-inflammatory disease multidimensional assessment report (JAIMAR) includes 16 parent or patient-centered measures and four dimensions that assess functional status, pain, therapeutic compliance and health-related quality of life (physical, social, school, emotional status) with disease outcome. It is proposed for use as both a proxy-report and a patient self-report, with the suggested age range of 8-18 years for use as a self-report.
RESULTS
250 children with FMF were included in the study. Total of 179 forms were filled up by parents and patients, and 71 forms were filled up by parents having children less than 8 years. Completing and scoring the JAIMAR can be done in 15 minutes. For the JAIMAR's dimensions, the Cronbach's alpha coefficient for internal consistency was between 0.507-0.998. There was a significant and a positive correlation between the test-retest scale scores (ICC=0.607-0.966). Concerning construct validity, all factors loadings were above 0.30. For the criterion validity, the correlation level between each dimension and the related scale ranged from medium (r=0.329, p<0.0001) to large (r=0.894, p<0.0001). The parents' proxy-reported and children's self-reported data were outstandingly concordant (r=0.770-0.989).
CONCLUSIONS
The development of the JAIMAR introduces a new and multi-dimensional approach in paediatric rheumatology practice. It is a new tool for children with auto-inflammatory dis-ease and it may help enhance their quality of care.
PubMed: 27791950
Affiliations:
Links toward previous steps (curation, corpus...)
Le document en format XML
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Paediatric Rheumatology Unit, Kayseri, Turkey.</nlm:affiliation><country xml:lang="fr">Turquie</country><wicri:regionArea>Erciyes University, Paediatric Rheumatology Unit, Kayseri</wicri:regionArea><wicri:noRegion>Kayseri</wicri:noRegion></affiliation></author><author><name sortKey="Bilginer, Yelda" sort="Bilginer, Yelda" uniqKey="Bilginer Y" first="Yelda" last="Bilginer">Yelda Bilginer</name><affiliation wicri:level="1"><nlm:affiliation>Hacettepe University Medical Faculty, Paediatric Rheumatology Unit, Ankara, Turkey.</nlm:affiliation><country xml:lang="fr">Turquie</country><wicri:regionArea>Hacettepe University Medical Faculty, Paediatric Rheumatology Unit, Ankara</wicri:regionArea><wicri:noRegion>Ankara</wicri:noRegion></affiliation></author><author><name sortKey="Karaman, Dursun" sort="Karaman, Dursun" uniqKey="Karaman D" first="Dursun" last="Karaman">Dursun Karaman</name><affiliation wicri:level="1"><nlm:affiliation>Gulhane Military Medical Faculty, Child and Adolescent Psychiatry Unit, Ankara, Turkey.</nlm:affiliation><country xml:lang="fr">Turquie</country><wicri:regionArea>Gulhane Military Medical Faculty, Child and Adolescent Psychiatry Unit, Ankara</wicri:regionArea><wicri:noRegion>Ankara</wicri:noRegion></affiliation></author><author><name sortKey="Peru, Harun" sort="Peru, Harun" uniqKey="Peru H" first="Harun" last="Peru">Harun Peru</name><affiliation wicri:level="1"><nlm:affiliation>Selcuk University Medical Faculty, Paediatric Rheumatology Unit, Konya, Turkey.</nlm:affiliation><country xml:lang="fr">Turquie</country><wicri:regionArea>Selcuk University Medical Faculty, Paediatric Rheumatology Unit, Konya</wicri:regionArea><wicri:noRegion>Konya</wicri:noRegion></affiliation></author><author><name sortKey="Simsek, Dogan" sort="Simsek, Dogan" uniqKey="Simsek D" first="Dogan" last="Simsek">Dogan Simsek</name><affiliation wicri:level="1"><nlm:affiliation>Gulhane Military Medical Faculty, Paediatric Rheumatology Unit, Ankara, Turkey.</nlm:affiliation><country xml:lang="fr">Turquie</country><wicri:regionArea>Gulhane Military Medical Faculty, Paediatric Rheumatology Unit, Ankara</wicri:regionArea><wicri:noRegion>Ankara</wicri:noRegion></affiliation></author><author><name sortKey="Aydog, Ozlem" sort="Aydog, Ozlem" uniqKey="Aydog O" first="Ozlem" last="Aydog">Ozlem Aydog</name><affiliation wicri:level="1"><nlm:affiliation>Sami Ulus Educational and Research Hospital, Paediatric Rheumatology Unit, Ankara, Turkey.</nlm:affiliation><country xml:lang="fr">Turquie</country><wicri:regionArea>Sami Ulus Educational and Research Hospital, Paediatric Rheumatology Unit, Ankara</wicri:regionArea><wicri:noRegion>Ankara</wicri:noRegion></affiliation></author><author><name sortKey="Unsal, Erbil" sort="Unsal, Erbil" uniqKey="Unsal E" first="Erbil" last="Unsal">Erbil Unsal</name><affiliation wicri:level="1"><nlm:affiliation>Dokuz Eylül University, Paediatric Rheumatology Unit, Izmir, Turkey.</nlm:affiliation><country xml:lang="fr">Turquie</country><wicri:regionArea>Dokuz Eylül University, Paediatric Rheumatology Unit, Izmir</wicri:regionArea><wicri:noRegion>Izmir</wicri:noRegion></affiliation></author><author><name sortKey="Gunduz, Zubeyde" sort="Gunduz, Zubeyde" uniqKey="Gunduz Z" first="Zubeyde" last="Gunduz">Zubeyde Gunduz</name><affiliation wicri:level="1"><nlm:affiliation>Erciyes University, Paediatric Rheumatology Unit, Kayseri, Turkey.</nlm:affiliation><country xml:lang="fr">Turquie</country><wicri:regionArea>Erciyes University, Paediatric Rheumatology Unit, Kayseri</wicri:regionArea><wicri:noRegion>Kayseri</wicri:noRegion></affiliation></author><author><name sortKey="Fidanci, Berna Eren" sort="Fidanci, Berna Eren" uniqKey="Fidanci B" first="Berna Eren" last="Fidanci">Berna Eren Fidanci</name><affiliation wicri:level="1"><nlm:affiliation>Gulhane Military Medical Faculty, School of Nursing, Department of Paediatrics, Ankara, Turkey.</nlm:affiliation><country xml:lang="fr">Turquie</country><wicri:regionArea>Gulhane Military Medical Faculty, School of Nursing, Department of Paediatrics, Ankara</wicri:regionArea><wicri:noRegion>Ankara</wicri:noRegion></affiliation></author><author><name sortKey="Kone Paut, Isabelle" sort="Kone Paut, Isabelle" uniqKey="Kone Paut I" first="Isabelle" last="Kone-Paut">Isabelle Kone-Paut</name><affiliation wicri:level="1"><nlm:affiliation>Division of Paediatric Rheumatology, Reference Center for Autoinflammatory Disorders CEREMAI, Bicêtre Hospital, University of Paris SUD, France.</nlm:affiliation><country xml:lang="fr">France</country><wicri:regionArea>Division of Paediatric Rheumatology, Reference Center for Autoinflammatory Disorders CEREMAI, Bicêtre Hospital, University of Paris SUD</wicri:regionArea><wicri:noRegion>University of Paris SUD</wicri:noRegion><wicri:noRegion>University of Paris SUD</wicri:noRegion></affiliation></author><author><name sortKey="Kasapcopur, Ozgur" sort="Kasapcopur, Ozgur" uniqKey="Kasapcopur O" first="Ozgur" last="Kasapcopur">Ozgur Kasapcopur</name><affiliation wicri:level="1"><nlm:affiliation>Istanbul University Cerrahpasa Medical Faculty, Paediatric Rheumatology Unit, Istanbul, Turkey.</nlm:affiliation><country xml:lang="fr">Turquie</country><wicri:regionArea>Istanbul University Cerrahpasa Medical Faculty, Paediatric Rheumatology Unit, Istanbul</wicri:regionArea><wicri:noRegion>Istanbul</wicri:noRegion></affiliation></author><author><name sortKey="Ravelli, Angelo" sort="Ravelli, Angelo" uniqKey="Ravelli A" first="Angelo" last="Ravelli">Angelo Ravelli</name><affiliation wicri:level="1"><nlm:affiliation>UO Pediatria 2, Istituto G.Gaslini, Genova, Italy.</nlm:affiliation><country xml:lang="fr">Italie</country><wicri:regionArea>UO Pediatria 2, Istituto G.Gaslini, Genova</wicri:regionArea><wicri:noRegion>Genova</wicri:noRegion></affiliation></author><author><name sortKey="Ozen, Seza" sort="Ozen, Seza" uniqKey="Ozen S" first="Seza" last="Ozen">Seza Ozen</name><affiliation wicri:level="1"><nlm:affiliation>Hacettepe University Medical Faculty, Paediatric Rheumatology Unit, Ankara, Turkey.</nlm:affiliation><country xml:lang="fr">Turquie</country><wicri:regionArea>Hacettepe University Medical Faculty, Paediatric Rheumatology Unit, Ankara</wicri:regionArea><wicri:noRegion>Ankara</wicri:noRegion></affiliation></author><author><name sortKey="Demirkaya, Erkan" sort="Demirkaya, Erkan" uniqKey="Demirkaya E" first="Erkan" last="Demirkaya">Erkan Demirkaya</name><affiliation wicri:level="1"><nlm:affiliation>Gulhane Military Medical Faculty, Paediatric Rheumatology Unit, FMF Arthritis Vasculitis and Orphan Disease Research Center, Ankara, Turkey. erkandemirkaya@yahoo.com.</nlm:affiliation><country xml:lang="fr">Turquie</country><wicri:regionArea>Gulhane Military Medical Faculty, Paediatric Rheumatology Unit, FMF Arthritis Vasculitis and Orphan Disease Research Center, Ankara</wicri:regionArea><wicri:noRegion>Ankara</wicri:noRegion></affiliation></author></titleStmt><publicationStmt><idno type="wicri:source">PubMed</idno><date when="2016">2016 Sep-Oct</date><idno type="RBID">pubmed:27791950</idno><idno type="pmid">27791950</idno><idno type="wicri:Area/Main/Corpus">000C95</idno><idno type="wicri:explorRef" wicri:stream="Main" wicri:step="Corpus" wicri:corpus="PubMed">000C95</idno><idno type="wicri:Area/Main/Curation">000C95</idno><idno type="wicri:explorRef" wicri:stream="Main" wicri:step="Curation">000C95</idno><idno type="wicri:Area/Main/Exploration">000C95</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en">A novel assessment tool for clinical care of patients with autoinflammatory disease: juvenile autoinflammatory disease multidimensional assessment report.</title><author><name sortKey="Konukbay, Dilek" sort="Konukbay, Dilek" uniqKey="Konukbay D" first="Dilek" last="Konukbay">Dilek Konukbay</name><affiliation wicri:level="1"><nlm:affiliation>Gulhane Military Medical Faculty, School of Nursing, Department of Paediatrics, Ankara, Turkey.</nlm:affiliation><country xml:lang="fr">Turquie</country><wicri:regionArea>Gulhane Military Medical Faculty, School of Nursing, Department of Paediatrics, Ankara</wicri:regionArea><wicri:noRegion>Ankara</wicri:noRegion></affiliation></author><author><name sortKey="Gattorno, Marco" sort="Gattorno, Marco" uniqKey="Gattorno M" first="Marco" last="Gattorno">Marco Gattorno</name><affiliation wicri:level="1"><nlm:affiliation>UO Pediatria 2, Istituto G.Gaslini, Genova, Italy.</nlm:affiliation><country xml:lang="fr">Italie</country><wicri:regionArea>UO Pediatria 2, Istituto G.Gaslini, Genova</wicri:regionArea><wicri:noRegion>Genova</wicri:noRegion></affiliation></author><author><name sortKey="Yildiz, Dilek" sort="Yildiz, Dilek" uniqKey="Yildiz D" first="Dilek" last="Yildiz">Dilek Yildiz</name><affiliation wicri:level="1"><nlm:affiliation>Gulhane Military Medical Faculty, School of Nursing, Department of Paediatrics, Ankara, Turkey.</nlm:affiliation><country xml:lang="fr">Turquie</country><wicri:regionArea>Gulhane Military Medical Faculty, School of Nursing, Department of Paediatrics, Ankara</wicri:regionArea><wicri:noRegion>Ankara</wicri:noRegion></affiliation></author><author><name sortKey="Frenkel, Joost" sort="Frenkel, Joost" uniqKey="Frenkel J" first="Joost" last="Frenkel">Joost Frenkel</name><affiliation wicri:level="3"><nlm:affiliation>University Medical Center, Department of Paediatrics, Utrecht, the Netherlands.</nlm:affiliation><country xml:lang="fr" wicri:curation="lc">Pays-Bas</country><wicri:regionArea>University Medical Center, Department of Paediatrics, Utrecht</wicri:regionArea><placeName><settlement type="city">Utrecht</settlement><region nuts="2" type="province">Utrecht (province)</region></placeName></affiliation></author><author><name sortKey="Acikel, Cengizhan" sort="Acikel, Cengizhan" uniqKey="Acikel C" first="Cengizhan" last="Acikel">Cengizhan Acikel</name><affiliation wicri:level="1"><nlm:affiliation>Gulhane Military Medical Faculty, Department of Biostatistics, Ankara, Turkey.</nlm:affiliation><country xml:lang="fr">Turquie</country><wicri:regionArea>Gulhane Military Medical Faculty, Department of Biostatistics, Ankara</wicri:regionArea><wicri:noRegion>Ankara</wicri:noRegion></affiliation></author><author><name sortKey="Sozeri, Betul" sort="Sozeri, Betul" uniqKey="Sozeri B" first="Betul" last="Sozeri">Betul Sozeri</name><affiliation wicri:level="1"><nlm:affiliation>Ege University, Paediatric Rheumatology Unit, Izmir, Turkey.</nlm:affiliation><country xml:lang="fr">Turquie</country><wicri:regionArea>Ege University, Paediatric Rheumatology Unit, Izmir</wicri:regionArea><wicri:noRegion>Izmir</wicri:noRegion></affiliation></author><author><name sortKey="Makay, Balahan" sort="Makay, Balahan" uniqKey="Makay B" first="Balahan" last="Makay">Balahan Makay</name><affiliation wicri:level="1"><nlm:affiliation>Dokuz Eylül University, Paediatric Rheumatology Unit, Izmir, Turkey.</nlm:affiliation><country xml:lang="fr">Turquie</country><wicri:regionArea>Dokuz Eylül University, Paediatric Rheumatology Unit, Izmir</wicri:regionArea><wicri:noRegion>Izmir</wicri:noRegion></affiliation></author><author><name sortKey="Aktay Ayaz, Nuray" sort="Aktay Ayaz, Nuray" uniqKey="Aktay Ayaz N" first="Nuray" last="Aktay Ayaz">Nuray Aktay Ayaz</name><affiliation wicri:level="1"><nlm:affiliation>Istanbul Kanuni Sultan Süleyman Educational and Research Hospital, Paediatric Rheumatology Unit, Istanbul, Turkey.</nlm:affiliation><country xml:lang="fr">Turquie</country><wicri:regionArea>Istanbul Kanuni Sultan Süleyman Educational and Research Hospital, Paediatric Rheumatology Unit, Istanbul</wicri:regionArea><wicri:noRegion>Istanbul</wicri:noRegion></affiliation></author><author><name sortKey="Barut, Kenan" sort="Barut, Kenan" uniqKey="Barut K" first="Kenan" last="Barut">Kenan Barut</name><affiliation wicri:level="1"><nlm:affiliation>Istanbul University Cerrahpasa Medical Faculty, Paediatric Rheumatology Unit, Istanbul, Turkey.</nlm:affiliation><country xml:lang="fr">Turquie</country><wicri:regionArea>Istanbul University Cerrahpasa Medical Faculty, Paediatric Rheumatology Unit, Istanbul</wicri:regionArea><wicri:noRegion>Istanbul</wicri:noRegion></affiliation></author><author><name sortKey="Kisaarslan, Aysenur" sort="Kisaarslan, Aysenur" uniqKey="Kisaarslan A" first="Aysenur" last="Kisaarslan">Aysenur Kisaarslan</name><affiliation wicri:level="1"><nlm:affiliation>Erciyes University, Paediatric Rheumatology Unit, Kayseri, Turkey.</nlm:affiliation><country xml:lang="fr">Turquie</country><wicri:regionArea>Erciyes University, Paediatric Rheumatology Unit, Kayseri</wicri:regionArea><wicri:noRegion>Kayseri</wicri:noRegion></affiliation></author><author><name sortKey="Bilginer, Yelda" sort="Bilginer, Yelda" uniqKey="Bilginer Y" first="Yelda" last="Bilginer">Yelda Bilginer</name><affiliation wicri:level="1"><nlm:affiliation>Hacettepe University Medical Faculty, Paediatric Rheumatology Unit, Ankara, Turkey.</nlm:affiliation><country xml:lang="fr">Turquie</country><wicri:regionArea>Hacettepe University Medical Faculty, Paediatric Rheumatology Unit, Ankara</wicri:regionArea><wicri:noRegion>Ankara</wicri:noRegion></affiliation></author><author><name sortKey="Karaman, Dursun" sort="Karaman, Dursun" uniqKey="Karaman D" first="Dursun" last="Karaman">Dursun Karaman</name><affiliation wicri:level="1"><nlm:affiliation>Gulhane Military Medical Faculty, Child and Adolescent Psychiatry Unit, Ankara, Turkey.</nlm:affiliation><country xml:lang="fr">Turquie</country><wicri:regionArea>Gulhane Military Medical Faculty, Child and Adolescent Psychiatry Unit, Ankara</wicri:regionArea><wicri:noRegion>Ankara</wicri:noRegion></affiliation></author><author><name sortKey="Peru, Harun" sort="Peru, Harun" uniqKey="Peru H" first="Harun" last="Peru">Harun Peru</name><affiliation wicri:level="1"><nlm:affiliation>Selcuk University Medical Faculty, Paediatric Rheumatology Unit, Konya, Turkey.</nlm:affiliation><country xml:lang="fr">Turquie</country><wicri:regionArea>Selcuk University Medical Faculty, Paediatric Rheumatology Unit, Konya</wicri:regionArea><wicri:noRegion>Konya</wicri:noRegion></affiliation></author><author><name sortKey="Simsek, Dogan" sort="Simsek, Dogan" uniqKey="Simsek D" first="Dogan" last="Simsek">Dogan Simsek</name><affiliation wicri:level="1"><nlm:affiliation>Gulhane Military Medical Faculty, Paediatric Rheumatology Unit, Ankara, Turkey.</nlm:affiliation><country xml:lang="fr">Turquie</country><wicri:regionArea>Gulhane Military Medical Faculty, Paediatric Rheumatology Unit, Ankara</wicri:regionArea><wicri:noRegion>Ankara</wicri:noRegion></affiliation></author><author><name sortKey="Aydog, Ozlem" sort="Aydog, Ozlem" uniqKey="Aydog O" first="Ozlem" last="Aydog">Ozlem Aydog</name><affiliation wicri:level="1"><nlm:affiliation>Sami Ulus Educational and Research Hospital, Paediatric Rheumatology Unit, Ankara, Turkey.</nlm:affiliation><country xml:lang="fr">Turquie</country><wicri:regionArea>Sami Ulus Educational and Research Hospital, Paediatric Rheumatology Unit, Ankara</wicri:regionArea><wicri:noRegion>Ankara</wicri:noRegion></affiliation></author><author><name sortKey="Unsal, Erbil" sort="Unsal, Erbil" uniqKey="Unsal E" first="Erbil" last="Unsal">Erbil Unsal</name><affiliation wicri:level="1"><nlm:affiliation>Dokuz Eylül University, Paediatric Rheumatology Unit, Izmir, Turkey.</nlm:affiliation><country xml:lang="fr">Turquie</country><wicri:regionArea>Dokuz Eylül University, Paediatric Rheumatology Unit, Izmir</wicri:regionArea><wicri:noRegion>Izmir</wicri:noRegion></affiliation></author><author><name sortKey="Gunduz, Zubeyde" sort="Gunduz, Zubeyde" uniqKey="Gunduz Z" first="Zubeyde" last="Gunduz">Zubeyde Gunduz</name><affiliation wicri:level="1"><nlm:affiliation>Erciyes University, Paediatric Rheumatology Unit, Kayseri, Turkey.</nlm:affiliation><country xml:lang="fr">Turquie</country><wicri:regionArea>Erciyes University, Paediatric Rheumatology Unit, Kayseri</wicri:regionArea><wicri:noRegion>Kayseri</wicri:noRegion></affiliation></author><author><name sortKey="Fidanci, Berna Eren" sort="Fidanci, Berna Eren" uniqKey="Fidanci B" first="Berna Eren" last="Fidanci">Berna Eren Fidanci</name><affiliation wicri:level="1"><nlm:affiliation>Gulhane Military Medical Faculty, School of Nursing, Department of Paediatrics, Ankara, Turkey.</nlm:affiliation><country xml:lang="fr">Turquie</country><wicri:regionArea>Gulhane Military Medical Faculty, School of Nursing, Department of Paediatrics, Ankara</wicri:regionArea><wicri:noRegion>Ankara</wicri:noRegion></affiliation></author><author><name sortKey="Kone Paut, Isabelle" sort="Kone Paut, Isabelle" uniqKey="Kone Paut I" first="Isabelle" last="Kone-Paut">Isabelle Kone-Paut</name><affiliation wicri:level="1"><nlm:affiliation>Division of Paediatric Rheumatology, Reference Center for Autoinflammatory Disorders CEREMAI, Bicêtre Hospital, University of Paris SUD, France.</nlm:affiliation><country xml:lang="fr">France</country><wicri:regionArea>Division of Paediatric Rheumatology, Reference Center for Autoinflammatory Disorders CEREMAI, Bicêtre Hospital, University of Paris SUD</wicri:regionArea><wicri:noRegion>University of Paris SUD</wicri:noRegion><wicri:noRegion>University of Paris SUD</wicri:noRegion></affiliation></author><author><name sortKey="Kasapcopur, Ozgur" sort="Kasapcopur, Ozgur" uniqKey="Kasapcopur O" first="Ozgur" last="Kasapcopur">Ozgur Kasapcopur</name><affiliation wicri:level="1"><nlm:affiliation>Istanbul University Cerrahpasa Medical Faculty, Paediatric Rheumatology Unit, Istanbul, Turkey.</nlm:affiliation><country xml:lang="fr">Turquie</country><wicri:regionArea>Istanbul University Cerrahpasa Medical Faculty, Paediatric Rheumatology Unit, Istanbul</wicri:regionArea><wicri:noRegion>Istanbul</wicri:noRegion></affiliation></author><author><name sortKey="Ravelli, Angelo" sort="Ravelli, Angelo" uniqKey="Ravelli A" first="Angelo" last="Ravelli">Angelo Ravelli</name><affiliation wicri:level="1"><nlm:affiliation>UO Pediatria 2, Istituto G.Gaslini, Genova, Italy.</nlm:affiliation><country xml:lang="fr">Italie</country><wicri:regionArea>UO Pediatria 2, Istituto G.Gaslini, Genova</wicri:regionArea><wicri:noRegion>Genova</wicri:noRegion></affiliation></author><author><name sortKey="Ozen, Seza" sort="Ozen, Seza" uniqKey="Ozen S" first="Seza" last="Ozen">Seza Ozen</name><affiliation wicri:level="1"><nlm:affiliation>Hacettepe University Medical Faculty, Paediatric Rheumatology Unit, Ankara, Turkey.</nlm:affiliation><country xml:lang="fr">Turquie</country><wicri:regionArea>Hacettepe University Medical Faculty, Paediatric Rheumatology Unit, Ankara</wicri:regionArea><wicri:noRegion>Ankara</wicri:noRegion></affiliation></author><author><name sortKey="Demirkaya, Erkan" sort="Demirkaya, Erkan" uniqKey="Demirkaya E" first="Erkan" last="Demirkaya">Erkan Demirkaya</name><affiliation wicri:level="1"><nlm:affiliation>Gulhane Military Medical Faculty, Paediatric Rheumatology Unit, FMF Arthritis Vasculitis and Orphan Disease Research Center, Ankara, Turkey. erkandemirkaya@yahoo.com.</nlm:affiliation><country xml:lang="fr">Turquie</country><wicri:regionArea>Gulhane Military Medical Faculty, Paediatric Rheumatology Unit, FMF Arthritis Vasculitis and Orphan Disease Research Center, Ankara</wicri:regionArea><wicri:noRegion>Ankara</wicri:noRegion></affiliation></author></analytic><series><title level="j">Clinical and experimental rheumatology</title><idno type="ISSN">0392-856X</idno></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Adolescent (MeSH)</term><term>Age Factors (MeSH)</term><term>Child (MeSH)</term><term>Child, Preschool (MeSH)</term><term>Cost of Illness (MeSH)</term><term>Familial Mediterranean Fever (diagnosis)</term><term>Familial Mediterranean Fever (physiopathology)</term><term>Familial Mediterranean Fever (psychology)</term><term>Familial Mediterranean Fever (therapy)</term><term>Female (MeSH)</term><term>Fever (diagnosis)</term><term>Fever (physiopathology)</term><term>Fever (psychology)</term><term>Fever (therapy)</term><term>Health Status (MeSH)</term><term>Hereditary Autoinflammatory Diseases (diagnosis)</term><term>Hereditary Autoinflammatory Diseases (physiopathology)</term><term>Hereditary Autoinflammatory Diseases (psychology)</term><term>Hereditary Autoinflammatory Diseases (therapy)</term><term>Humans (MeSH)</term><term>Male (MeSH)</term><term>Predictive Value of Tests (MeSH)</term><term>Quality of Life (MeSH)</term><term>Reproducibility of Results (MeSH)</term><term>Severity of Illness Index (MeSH)</term><term>Surveys and Questionnaires (MeSH)</term></keywords><keywords scheme="KwdFr" xml:lang="fr"><term>Adolescent (MeSH)</term><term>Coûts indirects de la maladie (MeSH)</term><term>Enfant (MeSH)</term><term>Enfant d'âge préscolaire (MeSH)</term><term>Enquêtes et questionnaires (MeSH)</term><term>Facteurs âges (MeSH)</term><term>Femelle (MeSH)</term><term>Fièvre (diagnostic)</term><term>Fièvre (physiopathologie)</term><term>Fièvre (psychologie)</term><term>Fièvre (thérapie)</term><term>Fièvre méditerranéenne familiale (diagnostic)</term><term>Fièvre méditerranéenne familiale (physiopathologie)</term><term>Fièvre méditerranéenne familiale (psychologie)</term><term>Fièvre méditerranéenne familiale (thérapie)</term><term>Humains (MeSH)</term><term>Indice de gravité de la maladie (MeSH)</term><term>Maladies auto-inflammatoires héréditaires (diagnostic)</term><term>Maladies auto-inflammatoires héréditaires (physiopathologie)</term><term>Maladies auto-inflammatoires héréditaires (psychologie)</term><term>Maladies auto-inflammatoires héréditaires (thérapie)</term><term>Mâle (MeSH)</term><term>Qualité de vie (MeSH)</term><term>Reproductibilité des résultats (MeSH)</term><term>Valeur prédictive des tests (MeSH)</term><term>État de santé (MeSH)</term></keywords><keywords scheme="MESH" qualifier="diagnosis" xml:lang="en"><term>Familial Mediterranean Fever</term><term>Fever</term><term>Hereditary Autoinflammatory Diseases</term></keywords><keywords scheme="MESH" qualifier="diagnostic" xml:lang="fr"><term>Fièvre</term><term>Fièvre méditerranéenne familiale</term><term>Maladies auto-inflammatoires héréditaires</term></keywords><keywords scheme="MESH" qualifier="physiopathologie" xml:lang="fr"><term>Fièvre</term><term>Fièvre méditerranéenne familiale</term><term>Maladies auto-inflammatoires héréditaires</term></keywords><keywords scheme="MESH" qualifier="physiopathology" xml:lang="en"><term>Familial Mediterranean Fever</term><term>Fever</term><term>Hereditary Autoinflammatory Diseases</term></keywords><keywords scheme="MESH" qualifier="psychologie" xml:lang="fr"><term>Fièvre</term><term>Fièvre méditerranéenne familiale</term><term>Maladies auto-inflammatoires héréditaires</term></keywords><keywords scheme="MESH" qualifier="psychology" xml:lang="en"><term>Familial Mediterranean Fever</term><term>Fever</term><term>Hereditary Autoinflammatory Diseases</term></keywords><keywords scheme="MESH" qualifier="therapy" xml:lang="en"><term>Familial Mediterranean Fever</term><term>Fever</term><term>Hereditary Autoinflammatory Diseases</term></keywords><keywords scheme="MESH" qualifier="thérapie" xml:lang="fr"><term>Fièvre</term><term>Fièvre méditerranéenne familiale</term><term>Maladies auto-inflammatoires héréditaires</term></keywords><keywords scheme="MESH" xml:lang="en"><term>Adolescent</term><term>Age Factors</term><term>Child</term><term>Child, Preschool</term><term>Cost of Illness</term><term>Female</term><term>Health Status</term><term>Humans</term><term>Male</term><term>Predictive Value of Tests</term><term>Quality of Life</term><term>Reproducibility of Results</term><term>Severity of Illness Index</term><term>Surveys and Questionnaires</term></keywords><keywords scheme="MESH" xml:lang="fr"><term>Adolescent</term><term>Coûts indirects de la maladie</term><term>Enfant</term><term>Enfant d'âge préscolaire</term><term>Enquêtes et questionnaires</term><term>Facteurs âges</term><term>Femelle</term><term>Humains</term><term>Indice de gravité de la maladie</term><term>Mâle</term><term>Qualité de vie</term><term>Reproductibilité des résultats</term><term>Valeur prédictive des tests</term><term>État de santé</term></keywords></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en"><p><b>OBJECTIVES</b></p><p>To develop and test a new multidimensional questionnaire for assessment of children with auto-inflammatory disease (AID) such as FMF, PFAPA, HIDS, TRAPS in standard clinical care.</p></div><div type="abstract" xml:lang="en"><p><b>METHODS</b></p><p>The juvenile auto-inflammatory disease multidimensional assessment report (JAIMAR) includes 16 parent or patient-centered measures and four dimensions that assess functional status, pain, therapeutic compliance and health-related quality of life (physical, social, school, emotional status) with disease outcome. It is proposed for use as both a proxy-report and a patient self-report, with the suggested age range of 8-18 years for use as a self-report.</p></div><div type="abstract" xml:lang="en"><p><b>RESULTS</b></p><p>250 children with FMF were included in the study. Total of 179 forms were filled up by parents and patients, and 71 forms were filled up by parents having children less than 8 years. Completing and scoring the JAIMAR can be done in 15 minutes. For the JAIMAR's dimensions, the Cronbach's alpha coefficient for internal consistency was between 0.507-0.998. There was a significant and a positive correlation between the test-retest scale scores (ICC=0.607-0.966). Concerning construct validity, all factors loadings were above 0.30. For the criterion validity, the correlation level between each dimension and the related scale ranged from medium (r=0.329, p<0.0001) to large (r=0.894, p<0.0001). The parents' proxy-reported and children's self-reported data were outstandingly concordant (r=0.770-0.989).</p></div><div type="abstract" xml:lang="en"><p><b>CONCLUSIONS</b></p><p>The development of the JAIMAR introduces a new and multi-dimensional approach in paediatric rheumatology practice. It is a new tool for children with auto-inflammatory dis-ease and it may help enhance their quality of care.</p></div></front></TEI><pubmed><MedlineCitation Status="MEDLINE" Owner="NLM"><PMID Version="1">27791950</PMID><DateCompleted><Year>2017</Year><Month>02</Month><Day>14</Day></DateCompleted><DateRevised><Year>2019</Year><Month>12</Month><Day>10</Day></DateRevised><Article PubModel="Print-Electronic"><Journal><ISSN IssnType="Print">0392-856X</ISSN><JournalIssue CitedMedium="Print"><Volume>34</Volume><Issue>6 Suppl 102</Issue><PubDate><MedlineDate>2016 Sep-Oct</MedlineDate></PubDate></JournalIssue><Title>Clinical and experimental rheumatology</Title><ISOAbbreviation>Clin Exp Rheumatol</ISOAbbreviation></Journal><ArticleTitle>A novel assessment tool for clinical care of patients with autoinflammatory disease: juvenile autoinflammatory disease multidimensional assessment report.</ArticleTitle><Pagination><MedlinePgn>129-135</MedlinePgn></Pagination><Abstract><AbstractText Label="OBJECTIVES" NlmCategory="OBJECTIVE">To develop and test a new multidimensional questionnaire for assessment of children with auto-inflammatory disease (AID) such as FMF, PFAPA, HIDS, TRAPS in standard clinical care.</AbstractText><AbstractText Label="METHODS" NlmCategory="METHODS">The juvenile auto-inflammatory disease multidimensional assessment report (JAIMAR) includes 16 parent or patient-centered measures and four dimensions that assess functional status, pain, therapeutic compliance and health-related quality of life (physical, social, school, emotional status) with disease outcome. It is proposed for use as both a proxy-report and a patient self-report, with the suggested age range of 8-18 years for use as a self-report.</AbstractText><AbstractText Label="RESULTS" NlmCategory="RESULTS">250 children with FMF were included in the study. Total of 179 forms were filled up by parents and patients, and 71 forms were filled up by parents having children less than 8 years. Completing and scoring the JAIMAR can be done in 15 minutes. For the JAIMAR's dimensions, the Cronbach's alpha coefficient for internal consistency was between 0.507-0.998. There was a significant and a positive correlation between the test-retest scale scores (ICC=0.607-0.966). Concerning construct validity, all factors loadings were above 0.30. For the criterion validity, the correlation level between each dimension and the related scale ranged from medium (r=0.329, p<0.0001) to large (r=0.894, p<0.0001). The parents' proxy-reported and children's self-reported data were outstandingly concordant (r=0.770-0.989).</AbstractText><AbstractText Label="CONCLUSIONS" NlmCategory="CONCLUSIONS">The development of the JAIMAR introduces a new and multi-dimensional approach in paediatric rheumatology practice. It is a new tool for children with auto-inflammatory dis-ease and it may help enhance their quality of care.</AbstractText></Abstract><AuthorList CompleteYN="Y"><Author ValidYN="Y"><LastName>Konukbay</LastName><ForeName>Dilek</ForeName><Initials>D</Initials><AffiliationInfo><Affiliation>Gulhane Military Medical Faculty, School of Nursing, Department of Paediatrics, Ankara, Turkey.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Gattorno</LastName><ForeName>Marco</ForeName><Initials>M</Initials><AffiliationInfo><Affiliation>UO Pediatria 2, Istituto G.Gaslini, Genova, Italy.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Yildiz</LastName><ForeName>Dilek</ForeName><Initials>D</Initials><AffiliationInfo><Affiliation>Gulhane Military Medical Faculty, School of Nursing, Department of Paediatrics, Ankara, Turkey.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Frenkel</LastName><ForeName>Joost</ForeName><Initials>J</Initials><AffiliationInfo><Affiliation>University Medical Center, Department of Paediatrics, Utrecht, the Netherlands.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Acikel</LastName><ForeName>Cengizhan</ForeName><Initials>C</Initials><AffiliationInfo><Affiliation>Gulhane Military Medical Faculty, Department of Biostatistics, Ankara, Turkey.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Sozeri</LastName><ForeName>Betul</ForeName><Initials>B</Initials><AffiliationInfo><Affiliation>Ege University, Paediatric Rheumatology Unit, Izmir, Turkey.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Makay</LastName><ForeName>Balahan</ForeName><Initials>B</Initials><AffiliationInfo><Affiliation>Dokuz Eylül University, Paediatric Rheumatology Unit, Izmir, Turkey.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Aktay Ayaz</LastName><ForeName>Nuray</ForeName><Initials>N</Initials><AffiliationInfo><Affiliation>Istanbul Kanuni Sultan Süleyman Educational and Research Hospital, Paediatric Rheumatology Unit, Istanbul, Turkey.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Barut</LastName><ForeName>Kenan</ForeName><Initials>K</Initials><AffiliationInfo><Affiliation>Istanbul University Cerrahpasa Medical Faculty, Paediatric Rheumatology Unit, Istanbul, Turkey.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Kisaarslan</LastName><ForeName>Aysenur</ForeName><Initials>A</Initials><AffiliationInfo><Affiliation>Erciyes University, Paediatric Rheumatology Unit, Kayseri, Turkey.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Bilginer</LastName><ForeName>Yelda</ForeName><Initials>Y</Initials><AffiliationInfo><Affiliation>Hacettepe University Medical Faculty, Paediatric Rheumatology Unit, Ankara, Turkey.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Karaman</LastName><ForeName>Dursun</ForeName><Initials>D</Initials><AffiliationInfo><Affiliation>Gulhane Military Medical Faculty, Child and Adolescent Psychiatry Unit, Ankara, Turkey.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Peru</LastName><ForeName>Harun</ForeName><Initials>H</Initials><AffiliationInfo><Affiliation>Selcuk University Medical Faculty, Paediatric Rheumatology Unit, Konya, Turkey.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Simsek</LastName><ForeName>Dogan</ForeName><Initials>D</Initials><AffiliationInfo><Affiliation>Gulhane Military Medical Faculty, Paediatric Rheumatology Unit, Ankara, Turkey.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Aydog</LastName><ForeName>Ozlem</ForeName><Initials>O</Initials><AffiliationInfo><Affiliation>Sami Ulus Educational and Research Hospital, Paediatric Rheumatology Unit, Ankara, Turkey.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Unsal</LastName><ForeName>Erbil</ForeName><Initials>E</Initials><AffiliationInfo><Affiliation>Dokuz Eylül University, Paediatric Rheumatology Unit, Izmir, Turkey.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Gunduz</LastName><ForeName>Zubeyde</ForeName><Initials>Z</Initials><AffiliationInfo><Affiliation>Erciyes University, Paediatric Rheumatology Unit, Kayseri, Turkey.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Fidanci</LastName><ForeName>Berna Eren</ForeName><Initials>BE</Initials><AffiliationInfo><Affiliation>Gulhane Military Medical Faculty, School of Nursing, Department of Paediatrics, Ankara, Turkey.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Kone-Paut</LastName><ForeName>Isabelle</ForeName><Initials>I</Initials><AffiliationInfo><Affiliation>Division of Paediatric Rheumatology, Reference Center for Autoinflammatory Disorders CEREMAI, Bicêtre Hospital, University of Paris SUD, France.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Kasapcopur</LastName><ForeName>Ozgur</ForeName><Initials>O</Initials><AffiliationInfo><Affiliation>Istanbul University Cerrahpasa Medical Faculty, Paediatric Rheumatology Unit, Istanbul, Turkey.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Ravelli</LastName><ForeName>Angelo</ForeName><Initials>A</Initials><AffiliationInfo><Affiliation>UO Pediatria 2, Istituto G.Gaslini, Genova, Italy.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Ozen</LastName><ForeName>Seza</ForeName><Initials>S</Initials><AffiliationInfo><Affiliation>Hacettepe University Medical Faculty, Paediatric Rheumatology Unit, Ankara, Turkey.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Demirkaya</LastName><ForeName>Erkan</ForeName><Initials>E</Initials><AffiliationInfo><Affiliation>Gulhane Military Medical Faculty, Paediatric Rheumatology Unit, FMF Arthritis Vasculitis and Orphan Disease Research Center, Ankara, Turkey. erkandemirkaya@yahoo.com.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><CollectiveName>and the FMF Arthritis Vasculitis and Orphan disease Research in Paediatric Rheumatology.</CollectiveName></Author></AuthorList><Language>eng</Language><PublicationTypeList><PublicationType UI="D016428">Journal Article</PublicationType><PublicationType UI="D023361">Validation Study</PublicationType></PublicationTypeList><ArticleDate DateType="Electronic"><Year>2016</Year><Month>10</Month><Day>25</Day></ArticleDate></Article><MedlineJournalInfo><Country>Italy</Country><MedlineTA>Clin Exp Rheumatol</MedlineTA><NlmUniqueID>8308521</NlmUniqueID><ISSNLinking>0392-856X</ISSNLinking></MedlineJournalInfo><SupplMeshList><SupplMeshName Type="Disease" UI="C536657">Periodic fever, familial, autosomal dominant</SupplMeshName></SupplMeshList><CitationSubset>IM</CitationSubset><MeshHeadingList><MeshHeading><DescriptorName UI="D000293" MajorTopicYN="N">Adolescent</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D000367" MajorTopicYN="N">Age Factors</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D002648" MajorTopicYN="N">Child</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D002675" MajorTopicYN="N">Child, Preschool</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D017281" MajorTopicYN="N">Cost of Illness</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D010505" MajorTopicYN="N">Familial Mediterranean Fever</DescriptorName><QualifierName UI="Q000175" MajorTopicYN="Y">diagnosis</QualifierName><QualifierName UI="Q000503" MajorTopicYN="N">physiopathology</QualifierName><QualifierName UI="Q000523" MajorTopicYN="N">psychology</QualifierName><QualifierName UI="Q000628" MajorTopicYN="N">therapy</QualifierName></MeshHeading><MeshHeading><DescriptorName UI="D005260" MajorTopicYN="N">Female</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D005334" MajorTopicYN="N">Fever</DescriptorName><QualifierName UI="Q000175" MajorTopicYN="Y">diagnosis</QualifierName><QualifierName UI="Q000503" MajorTopicYN="N">physiopathology</QualifierName><QualifierName UI="Q000523" MajorTopicYN="N">psychology</QualifierName><QualifierName UI="Q000628" MajorTopicYN="N">therapy</QualifierName></MeshHeading><MeshHeading><DescriptorName UI="D006304" MajorTopicYN="N">Health Status</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D056660" MajorTopicYN="N">Hereditary Autoinflammatory Diseases</DescriptorName><QualifierName UI="Q000175" MajorTopicYN="Y">diagnosis</QualifierName><QualifierName UI="Q000503" MajorTopicYN="N">physiopathology</QualifierName><QualifierName UI="Q000523" MajorTopicYN="N">psychology</QualifierName><QualifierName UI="Q000628" MajorTopicYN="N">therapy</QualifierName></MeshHeading><MeshHeading><DescriptorName UI="D006801" MajorTopicYN="N">Humans</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D008297" MajorTopicYN="N">Male</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D011237" MajorTopicYN="N">Predictive Value of Tests</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D011788" MajorTopicYN="N">Quality of Life</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D015203" MajorTopicYN="N">Reproducibility of Results</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D012720" MajorTopicYN="N">Severity of Illness Index</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D011795" MajorTopicYN="Y">Surveys and Questionnaires</DescriptorName></MeshHeading></MeshHeadingList></MedlineCitation><PubmedData><History><PubMedPubDate PubStatus="received"><Year>2016</Year><Month>03</Month><Day>15</Day></PubMedPubDate><PubMedPubDate PubStatus="accepted"><Year>2016</Year><Month>06</Month><Day>27</Day></PubMedPubDate><PubMedPubDate PubStatus="pubmed"><Year>2016</Year><Month>10</Month><Day>30</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="medline"><Year>2017</Year><Month>2</Month><Day>15</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="entrez"><Year>2016</Year><Month>10</Month><Day>30</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate></History><PublicationStatus>ppublish</PublicationStatus><ArticleIdList><ArticleId IdType="pubmed">27791950</ArticleId><ArticleId IdType="pii">10539</ArticleId></ArticleIdList></PubmedData></pubmed><affiliations><list><country><li>France</li><li>Italie</li><li>Pays-Bas</li><li>Turquie</li></country><region><li>Utrecht (province)</li></region><settlement><li>Utrecht</li></settlement></list><tree><country name="Turquie"><noRegion><name sortKey="Konukbay, Dilek" sort="Konukbay, Dilek" uniqKey="Konukbay D" first="Dilek" last="Konukbay">Dilek Konukbay</name></noRegion><name sortKey="Acikel, Cengizhan" sort="Acikel, Cengizhan" uniqKey="Acikel C" first="Cengizhan" last="Acikel">Cengizhan Acikel</name><name sortKey="Aktay Ayaz, Nuray" sort="Aktay Ayaz, Nuray" uniqKey="Aktay Ayaz N" first="Nuray" last="Aktay Ayaz">Nuray Aktay Ayaz</name><name sortKey="Aydog, Ozlem" sort="Aydog, Ozlem" uniqKey="Aydog O" first="Ozlem" last="Aydog">Ozlem Aydog</name><name sortKey="Barut, Kenan" sort="Barut, Kenan" uniqKey="Barut K" first="Kenan" last="Barut">Kenan Barut</name><name sortKey="Bilginer, Yelda" sort="Bilginer, Yelda" uniqKey="Bilginer Y" first="Yelda" last="Bilginer">Yelda Bilginer</name><name sortKey="Demirkaya, Erkan" sort="Demirkaya, Erkan" uniqKey="Demirkaya E" first="Erkan" last="Demirkaya">Erkan Demirkaya</name><name sortKey="Fidanci, Berna Eren" sort="Fidanci, Berna Eren" uniqKey="Fidanci B" first="Berna Eren" last="Fidanci">Berna Eren Fidanci</name><name sortKey="Gunduz, Zubeyde" sort="Gunduz, Zubeyde" 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first="Betul" last="Sozeri">Betul Sozeri</name><name sortKey="Unsal, Erbil" sort="Unsal, Erbil" uniqKey="Unsal E" first="Erbil" last="Unsal">Erbil Unsal</name><name sortKey="Yildiz, Dilek" sort="Yildiz, Dilek" uniqKey="Yildiz D" first="Dilek" last="Yildiz">Dilek Yildiz</name></country><country name="Italie"><noRegion><name sortKey="Gattorno, Marco" sort="Gattorno, Marco" uniqKey="Gattorno M" first="Marco" last="Gattorno">Marco Gattorno</name></noRegion><name sortKey="Ravelli, Angelo" sort="Ravelli, Angelo" uniqKey="Ravelli A" first="Angelo" last="Ravelli">Angelo Ravelli</name></country><country name="Pays-Bas"><region name="Utrecht (province)"><name sortKey="Frenkel, Joost" sort="Frenkel, Joost" uniqKey="Frenkel J" first="Joost" last="Frenkel">Joost Frenkel</name></region></country><country name="France"><noRegion><name sortKey="Kone Paut, Isabelle" sort="Kone Paut, Isabelle" uniqKey="Kone Paut I" first="Isabelle" last="Kone-Paut">Isabelle 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